PREAMBLE

The association of Leijonaemot supports the families of children with special needs in Finland nationwide. Leijonaemot offers guidance, peer support and help for the parents and families of children with special needs.

Leijonaemot has taken over the responsibilities of NOBAB i Finland as of June 8th 2022. The association seeks a membership of the European Association for Children in Hospital, EACH to represent Finland.

Leijonaemot works together with the professionals on the medical field in Finland to ensure the rights of children and families are included in the overall care of sick children in hospitals.

As a part of NOBAB i Finland, Leijonaemot is to

  • support parents and medical professionals for sick children
  • promote conversation across professional boundaries
  • take a stand and give statements on the practices in children’s medical care
  • keep on display the rights of children and families in hospitals

These standards are based on the UN Convention on the Rights of the Child.

The association rules of Leijonaemot

The rules guide the support activities and events of Leijonaemot ry (registered association), which are organized by the association’s board, employees, volunteers and members.

ASSOCIATION RULES

1 § NAME

The name shall be/is Leijonaemot ry (hereinafter Leijonaemot).

The domicile of Leijonaemot will be the address of the association’s main office. The current address is Pasilankatu 2, 00240 Helsinki, Finland.

2 § Purpose

The association is established to support the parents of children with special needs and

  • to promote peer support among the parents of children with special needs
  • to promote collaboration between the parents of children with special needs and the representatives on social, health care and educational fields
  • to support the well-being of its members and their families
  • to influence and increase access to information regarding the families of children with special needs
  • to enhance the position and visibility of the parents of children with special needs and their families in society
  • to promote, support and oversee the interests of the families of children with special needs in social matters

To fulfill its purpose, the association is

  • to share information about the parenthood and families of children with special needs through lecturing/lectures, providing guidance and publishing related materials
  • to work together with other organizations and communities
  • to organize counseling, support and to share information among its members
  • to organize meetings, lectures, demonstrations, and events for its members and the general public
  • to grant donations to individuals and communities to promote the work of the association

To support its activities, the association can

  • sell materials related to its purpose
  • accept donations, testaments, grants and participate in fundraising or other events to raise funds
  • own necessary movable and real property pertaining to its activities

The association is politically and religiously nonaligned.

§ 3 Members:

The parents of children with special needs can become full members of the association by accepting the purpose and rules of the association. These parents can be biological or foster parents, adoptive parents, bonus parents or parents whose child with special needs has been placed in custody outside the home or has passed away.

The parents of children with special needs living in the same household are considered as full members. Each full member has the right to vote at the association’s meetings.

Memberships are approved by the board upon written application.

A person or legal entity (e.g., organization) regardless of domicile that want to support the association and pay their membership fees can become a supporting member of the association.

Supporting members do not have the right to vote at the association’s meetings.

A person who has significant positive impact on the association can be invited as an honorary member at the board’s proposal. Honorary members who are also parents of children with special needs have the right to vote at the association’s meetings.

Full members and supporting members pay an annual membership fee. The membership amounts are confirmed annually at the association’s meetings. Honorary members do not pay membership fees.

A member has a right to terminate the membership at any time by a written notice to the board. A Member can also be dismissed from the association if the member has failed to pay membership fee or has otherwise failed to fulfill the obligations or follow the rules of the association.

4 § The board of the association

The affairs of the association are handled by its board. The board members are elected at the association’s annual meeting. The board consists of a chairman, 2-4 full members, and 0-4 deputy members.

Each year half of the board members resign based on the member’s length of service. At the end of a term, a member can be re-elected. A member’s term in the office is two (2) calendar years.

The roles and responsibilities of the board members are elected by the board.

The board invites the members to a board meeting as needed basis or when at least half of the board members request it.

The board has a quorum when at least half of its full members or deputy members, including the chairman or vice chairman, are present.

Voting result is decided by a simple majority vote. In the event of a tie, the chairman’s vote will decide, but in elections, a lottery will be held.

A replacement (deputy member) for each full member is elected at the organizational meeting of the board. In the event a full member is unable to attend the association’s meeting, a deputy member takes over the duties of the full member.

The board can meet and make decisions electronically (online, e-mail), over the phone or in person.

§ 5 The signature rights of the association:

The association’s official and legal documents can be signed by the board’s chairman or vice-chairman, the association’s executive director, secretary, or financial manager. Two signatures are required.

6 § Audit:

The association elects one auditor and one deputy auditor at association’s fall meeting. The association’s accounting period and the auditors’ term of office is one calendar year.

The association’s financial statement, any related documents and the annual report must be given to the auditor no later than one month before the association’s spring meeting.

The auditor must give his/her written statement to the board no later than two weeks before the association’s meeting. The financial statements are confirmed and the decision to release the board members from the liability is made at the association’s spring meeting.

7 § Association meetings:

The association’s annual meetings are the spring (February-May) and fall (August-November) meetings, and any additional meetings as deemed necessary. Additional meetings are held per association’s decision, board’s notice, or written request from the members who are entitled to vote.

The invitations to meetings must be sent by email to association’s members and other parties at least seven (7) days prior the meeting.

The meeting times are announced through electronic media and on the association’s website.

At the association’s meetings, each full member has one vote. The supporting member has the right to attend and speak but has no voting rights at the meeting.

Should the board so decide, the association’s members are able to attend the meetings electronically/via online meeting systems/applications.

Unless otherwise specified, the decisions of the association’s meeting must be supported by more than half of the votes cast/given votes. In the event of a tie, the vote of the meeting’s chairman will decide, but in the case of elections, a lottery will be held to determine the outcome.

8 § Duties of the executive director

The tasks of the executive director are

  • to manage the association’s daily activities
  • to present matters/issues and prepare any related materials for the meetings of the board and the association
  • to give statements regarding the issues to be discussed at the association’s meetings and ensure implementation of these decisions
  • to oversee the management of the association’s funds, ensuring statutory bookkeeping and seeking funding for continuance of activities in the future
  • to manage public relations and work with other organizations in the field on public matters
  • to make public statements on behalf of the association

9 § Changing the rules and terminating the association

The decision to change the association’s rules or termination of the association must be made by a majority of at least three-fourths (3/4) of the votes cast at the association’s meeting.

The meeting invitation to such meeting must mention these matters. Should the association be terminated, the association’s funds are to be used in the manner as determined in the meeting.